2nd OPINION

MONDAY we went to a second opinion on Dakotas foot   Although  i am not sure that i heard anything more at least i can say that i liked the doctor.                           I THINK WE WILL STILL GO FOR A OUT OF PLAN  ASSESSMENT

THIS DOCTOR SAYS IT COULD BE UP TO A YEAR BEFORE THE SCAR TISSUE ALLOWS THE MUSCLES AND TENDONS TO HEAL AND LOOSEN HIS TOES AND HE AT LEAST SAID THERE WERE THING THAT COULD BE DONE-- HE ALSO ORDERED A NIGHT CAST TO HELP STRETCH HIS FOOT AND WANTS HIM TO WEAR AN ARCH SUPPORT TO HELP THE BIG TOE.

WE WILL CONTINUE PHYSICAL THERAPY AND HAVE A RETURN APPOINTMENT IN 5 WEEKS --SO AT LEAST I FEEL LIKE HES DOING SOMETHING--HIS NAME IS FRED ANDERSON IN PODIATRY AT KAISER IN THE NEW FACILITY AT VINEYARD IN ONTARIO. MARY ANZIANO HAS BEEN A DREAM AS WELL --SHE HAS ASSISTED ME ANYTIME I HAVE ASKED HER  SHES IN FONTANA AND IS A NURSE PRACTIONER. KUDOS TO BOTH

FOR NOW DAKOTA  CONTINUES TO COMPLAIN THATHIS FOOT AND TOES HURT AND IT SEEMS TO BE THE HEEL ,THE BALL AND THE TOES I JUST CANT BELIEVE THAT ALL OF THIS IS HAPPENING   DOESNT HE HAVE ENUF TO DEAL WITH --WITHOUT HAVING SOMETHING WRONG WITH HIS FOOT AND LEG???

IT HAS  STRESSED  ME OUT AND BEEN SO EMOTIONAL FOR DAKOTA . TWISTING HIS HAIR CHEWING TOWELS BEYOND RECOGNITION  AND I CANT TELL YOU HOW MANY NIGHTS WE SAT UP AND HE CRIED ABOUT HIS FOOT NOT BEING RIGHT AND THAT HE WAS GONNA BE CRIPPLED FOR THE REST OF HIS LIFE  AND ALL OF IT WAS SET OFF BY A BEHAVIOR BEFORE HE BROKE DOWN ABOUT FOOT

SO  A LOT OF THE STUFF WE HAVE BEEN GOING THRU HAS BEEN TRIGGERED BY THIS STUPID ACCIDENT-- OOOOHHH LET ME SCREAM!!!

 

VIEW ARCHIVES

The outline for the Center is in the march archives   dated 3/24              for anyone who would lke to read about it                                                                             

I will be adding more details of ideas later!

REPORT ON THE PICNIC

Hello

I hosted our first picnic/potluck this past weekend In case you havent read before I have this vision for a Center for Autism  to intially start in the Inland Empire. It would consist of any and all services for anyone seeling help or asistance. I have my vision posted on a past exerpt  . This picnic was a "lets get started and  see what kind of interest is out there" type of get -to-gether. There were about 30 adults and a bunch of kids. there were 3 proffessors from 3 different colleges and 3 professionals who have holistic and vitamin supplement businesses. Although i would have liked a stronger attendance i continue to be encouraged as i have had several emails since the picnic with more families expressing interest and involvement for the next meeting which will be toward the end of september.

i had a questionaire for families to fill out and i talked about my ideas and things that we will need to get started --my commitment before the next meeting is to get answers about the 501 non profit status  and seeking a permenent  place and more funding ideas plus trying to get a "board or streering committee" formed.

i will be doing a few smaller meet and greet meetings with a few that were not able to attend the picnic -most of which are out of the immediate area like orange county and the high desert--

As for the picnic  we all had a great time and it was rather casual and relaxed lots of good  company , good food and great weather                                                                      Anyone who has any inquiries , questions or would like more information or a small meeting to find out about my dream and reality for all families can email me at              daksopendoor@aol.com

Thanks for viewing  my journal!  

SLEEP ISSUES

IT IS ACTUALLY THE  3 RD OF AUGUST  BUT I HAVE AN EXERPT   { FROM JULY 30TH}  THAT I SENT ANOTHER FRIEND ABOUT THE MINOR  AND I DO SAY MINOR SLEEP  ISSUES I HAVE HAD WITH DAKOTA. SINCE THEN  I HAVE HAD ANOTHER GO AROUND WITH HIM  2 DAYS LATER  AND UPON REFLECTION  OF THE  INCIDENTS  I THINK I AM GETTING A BIGGER PICTURE OF WHAT IS HAPPENING!!!

HE HAS BEEN BED BOUND FOR 3 MONTHS AND I THINK THAT THAT SIMPLE FACT ALONE IS THE TRIGGER FOR HIS SLEEPING PATTERN CHANGE---

HERES THE EXERPT

THE PAST FEW DAYS HAVE BEEN A BIT CHALLENGING FOR ME CUZ DAKOTA IS TRYING TO WALK ON HIS OLD CRIPPLED UP FOOT AND THATS A GOOD THING BUT BECAUSE HES MOVING AROUND HE NEEDS TO BE MONITORED A LITTLE MORE SO HE DOESNT TRIP OR FALL--- AND LAST NIGHT I DONT KNOW WHAT THE HELL WAS GOING ON BUT WE TURNED OUT THE LIGHTS AT 2 AND I DOZED OFF A COUPLE OF TIMES ONLY TO BE WOKEN BY "MOMMY  MOMMY"                             MAN WAS I ON EDGE  FINALLY AT 4 05 I WAKEUP AGAIN TO FIND HES NEVER REALLY GONE TO SLEEP HES CHEWED THE SHEET UP AND HES HUNGRY SHIT-------------- I KNOW I HAVE BEEN LUCKY CUZ WE HAVE NEVER HAD TO MANY SLEEP ISSUES BUT LAST NIGHT PROVED THAT I WAS SPOILED--DAKOTA FOR THE MOST PART IS STILL A 12 HOURS ON AND 12 HOURS OFF BABY AND THAT HAS PRESENTED PROBLEMS BUT ONCE YOU GET THE ROUTINE OF  IT COMES PRETTY EASY. SO ANYWAY I GOT UP GAVE HIM SOME WATERMELON AND TAPIOCA {WHAT A COMBINATION] HAD HIM  GO PEE GAVE HIM A DRINK OF WATER AND HE LAID BACK DOWN AND FELL ASLEEP ALMOST RIGHT AWAY SO I DONT KNOW WHAT WAS BOTHERING HIM  BUT NOW I FEEL BAD CUZ I GOT IRRITATED WHEN I KNOW ITS GOT TO BE HELL FOR HIM INSIDE HIS HEAD WHAT AM  I COMPLAINING ABOUT---ITS SO EASY TO DO THOUGH   TWO DAYS LATER WE HAD ANOTHER GO AROUND  I TRIED TO CHANGE ONE PATTERN SINCE HE HAS BEEN BED BOUND AND HE FLIPPED OUT ON ME  HE SCREAMED AND YELLED AND GRABBED MY ARM AND SAID I AM GOING TO TWIST YOUR ARM !! I HAVE LEARNED THAT THE BEST OPTION FOR ME IS TO GET VERY QUIET AND REMOVE MYSELF FROM IMMEDIATE CONTACT AND JUST WAIT   I KNOW WE DONT ALWAYS HAVE TIME TO DO IT BUT I AM CONVINCED THAT FOR YOUR CHILDS SAKE THE VERY BEST YOU CAN DO IS LET IT RUN ITS COURSE WITHOUT TRYING TO INTERCEDE AND SITTING AND JUST WATCHING HIM AND NOT SAYING ANYTHING WITH LITTLE OR NO REACTION HAS BEEN THE BEST "MEDICINE " FOR DAKOTA TO "DE COMPRESS" .WITHIN 10 TO 15 MINUTES HE RETURNS                              " TO OUR WORLD"     THEN USUALLY A WAVE OF REMORSE OR APOLOGIES COME       "IM SORRY MOMMY"  "I LOVE YOU MOMMY"  THEN DIALOGUE OPENS UP AGAIN AND THE WAVE IS OVER  BUT THIS ONE WENT A LITTLE FARTHER   HE THEN STARTED CRYING BIG TEARS AND TELLING ME HIS FOOT HURT AND WHY DID HE HAVE TO FALL AND WHEN IS IT GOING TO GET BETTER-- TO ME IT WAS A MOMENT OF CLARITY  HIS THOUGHTS AND EMOTIONS WERE ALIGNED   I SEE THESE USUALLY AFTER HE HAS A BEHAVIOR ITS ALMOST LIKE IT BECOMES A TRIGGER FOR HIS BRAIN TO REWIRE.  ALL OF THIS HAS BEEN OCCURRING LATE AT NIGHT AND ITS LIKE THAT IS HIS TIME TO HEAL HIS BRAIN ---{BETWEEN 2AM AND 4 AM}   SO MAYBE WHY OUR KIDS HAVE SOME SLEEP ISSUES IS BECAUSE THE BRAIN IS   RE- WIRING    AT NIGHT  AND OUR KIDS HAVE SUCH ACUTE AWARENESS THAT SLEEPING IS AN INTERRUPTION TO THE HEALING PROCESS--- I DONT KNOW ITS JUST AN OBSERVATION THAT I HAVE MADE FOR OUR SITUATION                                MY MOTHER HAS ALWAYS BEEN ONE WHO IS EXTREMELY AWARE OF HER BODY AND HOW IT FUNCTIONS AND SHE IS NOT AUTISTIC  WHO KNOWS MAYBE THIS IS ANOTHER  THEORY THAT CANNOT BE EXPLORED BECAUSE MOST OF OUR KIDS CANT COMMUNICATE WITH US IN THE TRADITIONAL WAY  BUT THE NEXT TIME YOU ARE HAVING A SLEEP ISSUE AND YOU ARE ON YOUR LAST NERVE   JUST REMEMBER  TO STEP BACK TAKE A BREATH ,LOOK AROUND AND WAIT TO SEE IF YOUR BABY CAN GIVE YOU A CLUE ABOUT WHATS HAPPENING IN THEIR HEAD!!!

BACKLASH FROM ACCIDENT

WHY   DID THIS STUPID ACCIDENT HAPPEN????

I KNOW THAT IS A REALLY STUPID QUESTION CUZ NO ONE CAN ANSWER BUT THIS HAS TURNED INTO ANOTHER FIASCO.

WE HAVE JUST SPENT ANOTHER 3 DAYS GOING BACK AND FORTH TO KAISER ONLY TO FIND OUT THAT THERE MAYBE MORE COMPLICATIONS-- WITHOUT ADMITTING IT THE NURSE PRACTIONER WHO SAW DAKOTA ON MONDAY SAID THAT SHE THOUGHT HE MIGHT HAVE DEVELOPED "HAMMER TOES"" WHICH ARE USUALLY HEREDITARY BUT IF HIS FOOT WASNT FLEXED PROPERLY IN THE CAST IT MIGHT HAVE HAPENED THEN--HELLO!!!!

HOW MANY TIMES HAVE I TOLD THEM HES COMPLAINING ABOUT HIS TOES --BUT NOOOOOOOO DID THEY LISTEN   IT ALL STARTED WHEN HE GOT THE CAST OFF AND ALMOST 2 WEEKS LATER HES STILL NOT WALKING AND HE HAS A RED SPOT ON THE SIDE OF HIS FOOT THAT LOOKS LIKE THERES SOMETHING UNDERNEATH THE SKIN. SO THEY  XRAY AND COME BACK WITH THIS HAMMER TOE CRAP. NOW WE HAVE ADDITIONAL APPOINTMENTS TO TAKE HIM TO A PODIATRIST BECAUSE THEY ARE NOT SURE WHATS GOING ON ----

TO ADDINSULT OT INJURY WE HAD TO GO BACK TO THERAPY ON TUESDAY ONLY TO FIND OUT THAT THEY WONT BE DOING MUCH FOR HIM WE HAVE TO DO NUMEROUS EXERCISES AT HIME 4 TO 6 TIMES A DAY--- WHAT IN THE HELL DO I HAVE INSURANCE FOR--LOOK I DIONT MIND DOING EVERYTHING I CAN FOR DAKOTA BUT  MY PLATE IS  SO FULL RIGHT NOW I AM ABOUT TO EXPLODE AND THE MORE I THI9NK ABOUT IT AND WRITE ABOUT IT THE MORE I AM GETTING PISSED...

THINK I BETTER STOP FOR NOW CUZ MY BLOOD IS BOILING

MORE TO COME LATER THINK I WILL GO MAKE A FEW PHONE CALLS AND SCREAM AT SOME PEOPLE MAYBE THAT WILL MAKE ME FEE;L BETTER

FOR NOW________________________________

 

MET A GREAT PERSON TODAY

TODAY I RECIEVED A PHONE CALL FROM WHAT ITHINK IS GOING TO BE A WONDERFUL CONNECTION FOR AUTISM-- HER NAME IS MELISSA DN WE ONLY GOT TO TALK BREIFLY BUT SHE IS A PART OF THE AUTISM SOCIETY OF THE INLAND EMPIRE AND SHE IS A FIRECRACKER.

SHE HAS A 7 YEAR OLD BOY WHO HAS AUTISM AND SHE WAS BRAVE ENUF TO HAVE ANOTHER GO AROUND AND JUST GIVE BIRTH TO A BABY GIRL 4 WEEKS AGO.

ALTHOUGH OUR CONVERSTION WAS SIGNIFICANT I FELT LIKE I COULD TALK TO HER FOR HOURS AND I THINK THAT SHE CAN HELP ME AS MUCH AS I COULD BE AN ASSET TO HER  SO I AM REALLY EXCITED!!!       

I HAVE ALSO RECIEVED SEVERAL RESPONSES TO THE PICNIC POTLUCK FOR THE CENTER FOR AUTISM AND I AM ACTUALY TURNING APPREHENSION INTO EXCITEMENT CUZ I THINK THIS CAN REALLY HAPPEN  WE ALL NEED TO DRAW ON EACH OTHERS STRENGTHS AND ABILITIES.

THIS IS A DREAM THAT MANY OF US HAVE IT JUST TAKES THE RIGHT COMBINATION OF DREAMERS AND DOERS  MIXED WITH A LITTLE LUCK AND SKILL TO MAKE IT HAPPEN!!!!