Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Sunday, September 30, 2012

Disney Birthday Extravaganza

Happy Birthday Dakota------
Well its been almost a month since I lasted posted and any guesses as to why??? Perhaps a certain someone had a Birthday Celebration!!!!

Yes indeedy we spent the better part of a week at the Disneyland Hotel with all the trimmings- including a a room on the top floor where we could sit out on the patio and watch the fireworks every night, a dinner at Gooys Kitchen with his friends, a day at both the parks with friends who spent the night after Goofys Kitchen and LOOK AT THAT CAKE???? In honor of CarsLand he had a full blown replica of Lightening Mc Queen  driving thru Radiator Springs with the Cozy Cone Motel to boot.{ I have to admit I did think of Madonnas CONE boobs from years ago but decided that it was still OK since he is an adult now anyway!!!!!}

We had a great time and really only had one "glitch" { behavior} of any significance  SO I call that SUCCESS!

I know it seems like a lot and many would say too much .... Here's how I see it..
 First and foremost  Dakota has enough crap to go thru everyday of his life and if this gives him joy and maybe allows him to be "normal" for even one minute or hour its all worth it...
Secondly this kid does not ask me for Nikes or Air Jordan's, iPods, iPads, any type of clothing, to go to sporting events or concerts{ although he likes them,he doesn't ask for money for movies or cars or booze ----He loves still being around me , he doesn't break curfew.he doesn't go out and get in trouble , he doesn't wear his pants around his knees and he hasn't brought home a girl pregnant ... So how tough is life with him????I think sometimes I am blessed to have the kid I have instead of a typical one . Don't get me wrong I long for Dakota to be able to do all the other things BUT sometimes we just have to realize that things are the way they are and instead of whining about it just get up and get on with it>>>.

ALL IN ALL  A GREAT TIME WAS HAD BY ALL ... SAVE THE DATE CUZ i AM SURE WE WILL BE DOING IT AGAIN!


Thursday, September 6, 2012

FYI

Just an FYI if you ever want to find a particualr subject use the little "search" strip directly to the right.. for instance type in Silent Segregation and hit enter and all the posts will pop up... I know most of you are computer literate but this is for those who are not! 

Wednesday, September 5, 2012

Rant about Silent Segregation!

After the recent events reported about the American Airlines Pilot refusing passage to a Mom and a 16 year old Downs syndrome boy I had to prepost my rant about the Silent Segreagtion.... I dont expect everyone to totally embrace my son and his disability I simply want to be treated as others are! I witnessed so much discrimination and segregation eve  now 50 years after the Civil Rights act is law it just saddens me--- I hold no specific person accountable ACCEPT for everuone TAKING A MINUTE TO THINK HOW THEY WANT TO BE TREATED AND EXTEND THAT SAME IDEA TO MY SON AND MYSELF. There is another post back a ways titled Silent Segreation but for now this was a FB posting in reaction to this last fiasco ....
Oh Kristie I cannot believe this BUT I have to say I have written about this on my BLOG about most especially in schools and the school system how its like the Civil Rights act never was adopted--- I call it the "Silent Segregation" and it speaks to how our special needs kids clasrooms are always the "portables" and always in the back of the school segregated from the other classes and kids-- BUT even more so the TEACHERS who should realize that they are role models for their "typical" children will allow OUR kids to walk right by them and the TEACHERS  totally ignore them just like the children--- Dont they know that they have little minds that they can change or at least mold  BY setting the example to include and acknowledge our children even when they walk by a class or classroom of typical peers??? I want to give them {teachers} the benefit of the doubt and hope they are just wrapped up in their own day BUT I can tell you I witnessed it over and over for years and it breaks my heart that one little jesture by saying Hello there _____ how ya doin? And all those kids in that class see that their teacher speaks to them{our Kids} maybe they will do the same... One last gripe ---- I have even seen how special Ed teachers are shunned by other teachers and thats just as bad... WE ARE STILL IN THE BACK OF THE BUS AND ITS TIME FOR US TO MOVE UP TO THE GROUP...We dont need to be in the front just in the middle with everyone else.