Well I have certainly failed my blog these passed few months....I would like to attribute it to having less issues to write about but on retro spect its it the polar opposite...Along with several happy events there have been more challenges and road blocks recently ...some predictable, some anticipated and certainly some unforeseen:
"Have no fear I will get on the horse and ride again"haha, there are still may subjects to write about. It's about focus and stick-to-it'veness ....
I normally don't write about any other subjects but those pertain to Autism yet I feel compelled to veer of course just a tiny bit....One of the major reasons I have been so dismissive of posting is my own health..although not tragically bad ....age is rearing its head and I am having a bit of difficulty "accepting" and adapting ...it effects us all but when you are taking care of another human being it presses on your soul just a lil bit harder. Kinda get those deep thoughts about how all of this plays out and of course who will carry on for him once I am no longer here.We all have thoughts , again when you realize all the things you do on a daily basis and many many of them done with love only a parent could have..you often ponder how will anyone be able to do this? Then you know they won't ; your next thought is how will my "baby"go on? How will he adapt? Will he adapt? Will he be left to his own devices to sit in a chair or on a bed for the duration of his life been ignored or minimally "maintained"by someone who is being paid ..not because they care or love him? The obvious and big answer is once you are dead you won't be conscious to worry about it however while we are still here and among the living it swirls in our brain...
I am quite sure any parent feels or thinks these thoughts sometime after the birth of their children and maybe perhaps till they "leave the nest" many times even after they leave the nest ....with our kids they don't rally ...they don't pick themselves up by the boot straps when life happens; if anything they re gress. typical human being seem to most of the time bail themselves out . Perhaps not always successfully but get on with it never the less.
There's no "pat"answer or solution . Our kids at least many of them even lack the ability to communicate what they need..so how will they ever survive? Again guess once I gone I won't have the ABILTY to worry about it.
Just asking anyone out there who may have any influence or ability to advocate for these kids PLEASE STAND UP.....
learn what you can, know the individual enough to be a voice, help anyway you can for any individual you can! Cures may be coming, programs may support, organizations can help, personal knowledge is priceless.
