TONIGHT WE HAD TO SAY GOODBYE TO THE CAL STATE SAN BERNARDINO UCDD [ UNIVERSITY CENTER FOR DEVELOPMENTAL DISABILITIES ] PROGRAM FOR THOSE WHO DO NOT KNOW IT IS A CENTER THAT WORKS WITH OUR KIDS ONE ON ONE FOR APPROX. 3 HOURS ONE TIME A WEEK WITH INTERRUPT AND RE-DIRECTIVE THERAPY. WHILE THE CHILDREN ARE WORKING THERE IS A REQUIRED PARENT SUPPORT GROUP COUPLED WITH AND AN ACTIVITIY CENTER FOR SIBLINGS.
THIS HAS BEEN AN UNBELIEVEABLE PROGRAM FOR DAKOTA.HE HAS JUST BECOME SO ATTACHED THAT HE ASKED ME TONIGHT"WHAT ARE WE GOING TO DO ON TUESDAY NIGHTS NOW?" IT WAS HEARTBREAKING YET IT WAS A HAPPY MOMENT TO THINK THAT HIS REASONING AND LANGUAGE HAS PROGRESSED.
THIS PROGRAM HAS GIVEN ME INFORMATION AND STRENGTH TO STAND UP FOR SO MUCH MORE THAN I WOULD HAVE EVER BEEN ABLE TO DO -- AND MEET PEOPLE FROM ALL WALKS OF LIFE IN DIFFERENT SITUATIONS YET DISCOVER COMMON GROUND THAT WE ALL SHARE AS PARENTS OF CHILDREN GOING THRU THIS HELL THAT THEIR DISABILITY GIVES THEM.
THE COMBINATION OF ALL I HAVE LEARNED AND HEARD FROM OTHER PARENTS IN THIS PROGRAM AS WELL AS IT COMING TO AN END FOR US IS EXACTLY WHAT HAS STARTED THE IDEAS FOR THE CENTER MENTIONED IN THE BLOG A DATED EARLIER IN MARCH..... [2 OR 3 ARTICLES BELOW] IT IS SO OBVIOUS TO ME THAT THERE IS SUCH A GREAT NEED FOR SO MANY ITS A NO-BRAINER WE NEED TO START SOMETHING TO CONTINUE WHAT THE UCDD PROGRAM HAS STARTED. AND THAT IT BE AS ALL INCLUSIVE AS ANY PARENT NEED IT TO BE. WE NEED TO ADDRESS EVERY NEED FOR EVERY INDIVIDUAL AND FAMILY WHETHER WE PLAY A SMALL PART OR SOMETHING ALL INCLUSIVE!
THIS NEW CENTER HAS BEEN TAGGED AS AMBITIOUS ALL THE WAY TO TO MANY THINGS UNDER ONE ROOF BUT FOR NOW I WILL TRUDGE ON PUSHING AND CLAWWING FOR EVERY SINGLE THINGANT ONE PERSON NEEDS BECUASE I KNOW WHAT PARENTS HAVE GONE THROUGH AND WHAT THEY WANT AND WHAT THEY MIGHT NEED IN THEIR SITUATIUON AND OUR COMMITMENT IS TO DO EVERYTHING POSSIBLE TO HELP.
FOR NOWW STRUUGLE WITH THE ABSENCE OF A MUCH NEEDED PROGRAM IN OUR LIVES BUT I CLOSE WITH THE GREAT HOPE AND DREAM THAT THERE WILL SOON BE ANOTHER ONE TO REPLACE IT!
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