Recently I was discussing with another Mom her need for Yoga and that she had specific reasons why she liked to go to certain Yoga programs or locations-- She was kinda apologizing for her need to go to specific locations because she just liked them better---
I told her that if that is the one thing that keeps her sane or focused or centered there is no need to apologize --
This life with Autism affects every member of the family and most of the time in different ways. But; I have discovered that although this is a 24/7 365 job, you have to find a way to either release some of the pent up frustration or a diversion that feels like a guilty pleasure to maintain and even keel with your child.
Look, whether you have a typical child or one that is challenged whether you are young or older when you have your kids there will always be days or at least moments when you wonder what the hell you were thinking having a child-- Or at least suffer from a pang of selfishness when you want to shove it all and take off for a even an hour just to get away and fool yourself that your life is something made up in your head and you really are not living the life that has unfolded in front of you---
I decided a long time ago that I had to have at least ONE THING as a guilty pleasure. A way to indulge myself without compromising the care of my child. A way to pamper myself so I feel like a little piece of me still remains and my total existence is not all for Autism..
For me it is my soap opera {which is now going off the air--OH I digress!} But this is how I do it-- for that one hour out of the day I AM CLOSED FOR BUSINESS--- No phone calls; no appointments; no conversations about Autism; --- This is my lunch hour and if I just sit and veg out then so be it but 1 hour out of 24 is MINE! People laugh and sure there are always exceptions -- Autism doesn't have a schedule but I tape it everyday and somehow I find time to indulge ---
Now for others maybe its getting up early and sitting quietly before the day starts in the household or its a workout -- walk with the dog--- a ball game maybe its just messing around in the garden or the garage---even an hour of the computer --- Theres a million places and things but all I say is find that ONE THING and mark your territory! Everyone benefits .
Sunday, July 24, 2011
Monday, July 18, 2011
Making Decisions
Recently there was a mom who was administering B-12 shots to her son and they were causing extreme pain -- She had the "nerve" to question the pharmacy that was mixing them for her and got a lot of grief over her questions---As it turns out she finally was able to obtain these same B-12 shots from another provider and they were not causing any of the pain the previous ones were.
This is a perfect example of why you should never apologize for ANYTHING YOU QUESTION- It is another example of what I mean by GO WITH YOUR GUT!
Certain situations just do not feel right and when you sense that, you need to act on your suspicions--and again do not apologize.
This is a perfect example of why you should never apologize for ANYTHING YOU QUESTION- It is another example of what I mean by GO WITH YOUR GUT!
Certain situations just do not feel right and when you sense that, you need to act on your suspicions--and again do not apologize.
Update on Meds
Well we are a month into the new medicaation and it seems to be working-- alhthough technically Dakota has to take more MGS of Abilify than the Risperidol -- He is still on a minimal dose and it seems to be effective--I have seen a couple of "blow-outs" but not enough to warrant a change for now--or an increase either--
Dakota has dropped a few pounds but that is not important to me, my bigger purpose is the simple fact that his body has benn using the same drug for such an extended time. He needed to try something different to allow his body a change.
So Far So Good!
Dakota has dropped a few pounds but that is not important to me, my bigger purpose is the simple fact that his body has benn using the same drug for such an extended time. He needed to try something different to allow his body a change.
So Far So Good!
Sunday, July 3, 2011
Ok -Last post was a bit much for most.
So its been weeks since I wrote and I can tell from the response that most think I am really out of my tree---That's OK After you live with this "crap" for 24 years your minds has gone thru just about every scenario imaginable to man!
It gets back to wanting the best for our kids just like every one wants the best for their kids. They are human first and may people just don't realize that -- The behaviors are so big that many just cannot get over the inability of our kids to "reign it in" AND to that I say get over yourselves. We all have warts, we all have imperfections but as "typical" people we have many ways to mask our shortcomings-- In a way our kids are much more pure or raw--- they don't care if some see their flaws---We as their parents have to support our child and educate others about it!
You know everyone has "something" every Family has some issue--It can be dysfunction to cancer or anything in between . Thats not to dismiss what other people go through but my mission is to reach and tell ANYONE with on the scope of my voice what I can about my son and the Autism community in general. It is so incredibly important that our kids learn how to be a part of the community BUT it is also imperative that the community be educated and accepting of these kids like any other "faction" of society that may be different.
If I ever get a wide following it will be one of my priorities to preach acceptance and tolerance. These kids have value and deserve their place.
Spread the word and educate when you have an opportunity.and if you don't feel comfortable doing that then send them to my Blog! hee hee
It gets back to wanting the best for our kids just like every one wants the best for their kids. They are human first and may people just don't realize that -- The behaviors are so big that many just cannot get over the inability of our kids to "reign it in" AND to that I say get over yourselves. We all have warts, we all have imperfections but as "typical" people we have many ways to mask our shortcomings-- In a way our kids are much more pure or raw--- they don't care if some see their flaws---We as their parents have to support our child and educate others about it!
You know everyone has "something" every Family has some issue--It can be dysfunction to cancer or anything in between . Thats not to dismiss what other people go through but my mission is to reach and tell ANYONE with on the scope of my voice what I can about my son and the Autism community in general. It is so incredibly important that our kids learn how to be a part of the community BUT it is also imperative that the community be educated and accepting of these kids like any other "faction" of society that may be different.
If I ever get a wide following it will be one of my priorities to preach acceptance and tolerance. These kids have value and deserve their place.
Spread the word and educate when you have an opportunity.and if you don't feel comfortable doing that then send them to my Blog! hee hee
Friday, June 17, 2011
Could Autism be a part of evolution?
Someone recently posted a question what do you think causes Autism--- I have over thought this but I posted this about Malathion:
IMHO I have come to the conclusion that AUTISM is biological but there are environmental triggers--- My personal take is Malathion was to blame for my sons Autism-- that may not be the case for others--- Before I had my son, everyone I knew was using Malathion for there gardens and houseplants ; hell even the state of California and Massachusetts sprayed over cities to eradicate mosquitos-- they told you to cover you cars because it would eat the paint but never worried about us breathing it-- Then later on I found out it was actually developed in Natzi Germany as a nerve gas in the concentration camps--OMG WTF???????
It makes perfect sense to me; a chemical we were told was safe for gardens and breathing turns out to be a chemical that attacks the NEVOUS SYSTEM OF THE PESTS YOU ARE TRYING TO GET RID OF--{and is it not the nevous system on our kids that is affected the most?}
years later we have a huge increase of numbers in Autism cases directly in correspondence with the time this crap was released into the air!
OK I will step off my soap box
All of that being said the whether its vaccines, allergies or common chemicals there are just some of us that can tolerate it and other who cant-- and those are the ones who develop Autism.
I have another theory but it is so far fetched that I will keep it to myself -- {It goes along the line of evolution of our society}
I don't want people to think I am really off my rocker-- I have "over thought" this topic. Sometimes I convince myself I am crazy.
Then a mom wrote me and asked if I would tell her about my theory so I gave in --and wrote this:
my theory--
I my mind; I can see how Autism could be an evolutionary reaction to our society--Bear with me-- There has been many animals and species of animals that have changed and adapted as their environment changes. Some animals coats develop spots or colors to camouflage them in the wild, birds get larger wings or eyes that work better in the dark depending on their needs to survive. Even early man had wider and broader feet and a prominent upper brow all to deal with the elements of winter-to protect him from the snow. Our society has evolved from human beings seeking social interaction and involvement to isolation and mechanization.At one point people lived with family units that included aunts and uncles, grandparents and extended family. Often times because they had farms and needs for the people to support the household. Also many ethnicities have common practice among their families to live and support the family as a whole. America, in particular, since the 50's we have "progressed " by fragmenting the family and people in general. Business and corporations had neighborhood offices so you worked and lived in the same community now every thing is centralized in to one big office --forcing many to commute or even relocate. When you call anywhere any more you get automated systems that do not have a live body anywhere to talk too, Banking has resulted into ATMS and online services so you dont need to see a teller much less even go to the bank anymore-- hell you can even order groceries on the Internet and have them delivered. Everyone lives in their own POD they go to work, they come, home they isolate themselves --NO body even knows their neighbors. We are slowly evolving into a NON society--- and we wonder why our Autistic kids are missing the "Social chip"??? My theory, as far fetched as it seems, is that out kids are the 'Proto type of the future'. That some how human beings are evolving into a different creature than 100 years ago and our kids are actually the trend setters---THAT IS NOT TO SAY THAT THEY ARE DOING THIS conscientiously; what I am saying is that I see that our kids could be what all of us will eventually become--- that our society is shutting down we are withdrawing and social interaction will eventually become a thing of the past.
Ok that's is a stripped down version and it is easier when you are having a conversation about this topic but again I know that I am probably one of a few that may have even gone this far -- BUT I own this theory and I believe it could be somewhat similar to what is actually an explanation as to why Autism is exploding and not diminishing---
Its out there and probaly not a popular idea but I said it and I own it--I will leave it at that
IMHO I have come to the conclusion that AUTISM is biological but there are environmental triggers--- My personal take is Malathion was to blame for my sons Autism-- that may not be the case for others--- Before I had my son, everyone I knew was using Malathion for there gardens and houseplants ; hell even the state of California and Massachusetts sprayed over cities to eradicate mosquitos-- they told you to cover you cars because it would eat the paint but never worried about us breathing it-- Then later on I found out it was actually developed in Natzi Germany as a nerve gas in the concentration camps--OMG WTF???????
It makes perfect sense to me; a chemical we were told was safe for gardens and breathing turns out to be a chemical that attacks the NEVOUS SYSTEM OF THE PESTS YOU ARE TRYING TO GET RID OF--{and is it not the nevous system on our kids that is affected the most?}
years later we have a huge increase of numbers in Autism cases directly in correspondence with the time this crap was released into the air!
OK I will step off my soap box
All of that being said the whether its vaccines, allergies or common chemicals there are just some of us that can tolerate it and other who cant-- and those are the ones who develop Autism.
I have another theory but it is so far fetched that I will keep it to myself -- {It goes along the line of evolution of our society}
I don't want people to think I am really off my rocker-- I have "over thought" this topic. Sometimes I convince myself I am crazy.
Then a mom wrote me and asked if I would tell her about my theory so I gave in --and wrote this:
my theory--
I my mind; I can see how Autism could be an evolutionary reaction to our society--Bear with me-- There has been many animals and species of animals that have changed and adapted as their environment changes. Some animals coats develop spots or colors to camouflage them in the wild, birds get larger wings or eyes that work better in the dark depending on their needs to survive. Even early man had wider and broader feet and a prominent upper brow all to deal with the elements of winter-to protect him from the snow. Our society has evolved from human beings seeking social interaction and involvement to isolation and mechanization.At one point people lived with family units that included aunts and uncles, grandparents and extended family. Often times because they had farms and needs for the people to support the household. Also many ethnicities have common practice among their families to live and support the family as a whole. America, in particular, since the 50's we have "progressed " by fragmenting the family and people in general. Business and corporations had neighborhood offices so you worked and lived in the same community now every thing is centralized in to one big office --forcing many to commute or even relocate. When you call anywhere any more you get automated systems that do not have a live body anywhere to talk too, Banking has resulted into ATMS and online services so you dont need to see a teller much less even go to the bank anymore-- hell you can even order groceries on the Internet and have them delivered. Everyone lives in their own POD they go to work, they come, home they isolate themselves --NO body even knows their neighbors. We are slowly evolving into a NON society--- and we wonder why our Autistic kids are missing the "Social chip"??? My theory, as far fetched as it seems, is that out kids are the 'Proto type of the future'. That some how human beings are evolving into a different creature than 100 years ago and our kids are actually the trend setters---THAT IS NOT TO SAY THAT THEY ARE DOING THIS conscientiously; what I am saying is that I see that our kids could be what all of us will eventually become--- that our society is shutting down we are withdrawing and social interaction will eventually become a thing of the past.
Ok that's is a stripped down version and it is easier when you are having a conversation about this topic but again I know that I am probably one of a few that may have even gone this far -- BUT I own this theory and I believe it could be somewhat similar to what is actually an explanation as to why Autism is exploding and not diminishing---
Its out there and probaly not a popular idea but I said it and I own it--I will leave it at that
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