Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Monday, February 25, 2008

Taking the day as it comes!

Well I am sitting here waiting for Dakota to wake up--WE ARE NOT MORNIG PEOPLE !
This is another thing I have found for Dakota that his whole day goes better if I let him wake up naturally rather than roust him out of the bed and start the day with rushing ,pushing and chaos. Dakota will not use the bathroom at school so I decided right around middle school especially going into high school that The result of behaviors at school were directly related to making him get up and pushing him off to school--- I was an idiot sometimes hollering at him to get up and the day just started with a fight -- I came to the conclusion I just didn't need it and neither did Dakota
Soooooooooooooooooooooooo I have developed an understanding with the teacher and necessary personnel at school  that Dakota gets there when he gets there and the whole day is much better for everyone---- You know they are constantly changing things at school and DO NOT THINK ABOUT OUR KIDS and don't realize that they are the ones who just pushed the button on their behavior.--For instance they will plan and plan and plan to go to a place on a specific day and all of a sudden decide that they are going to go on Wednesday instead of Thursday !
Well hello --- maybe all the other kids can tolerate that but it bothers Dakota ---Its called ANXIETY and he has planned for weeks that something will happen on a certain day and POW they have gone and screwed up his plans-- Or what about the stupid schedule at school ????  One day week they have the abbreviated schedule then al of a sudden they throw in a pep rally which screws the schedule even more-- OR --- they have a fire drill and bells start going off unexpectedly --WHAT DO YOU THINK???? If I had Autism I would be raising hell myself.
Is it any wonder our kids act out??? Just when they think they have something figured out some force changes things and flips their world upside down!
One day I took Dakota to school and the vice -principle was standing out there like a proud papa cuz they were getting the locker room re-done with new cement. So there's the cement truck grinding away no more than 50 to 100 feet away from Dakotas classroom..Now mind you there had just been a break from school and they could have done it when the kids were gone BUT    N O   They wait till the kids are back and here it is  ROOROOROOROOROO I looked at the vice principle and said "Don't call me when Dakota has a melt down at lunch because you guys could not have planned this better!"    They just don't realize how different our kids are and how things like that don't bother most people--- sounds ; smells ; colors ; even different people  it all makes a difference for our kids . We don't have the deficit that they struggle with so we don't recognize trouble until they act out then its their fault but most of the time its someone else who has created the problem.
We cant expect people to anticipate every glitch of our kids but we can expect them to be treated with respect and not blamed when they blow a fuse because of something we have done.

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