Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Monday, May 2, 2005

JUST ANOTHER DAY IN PARADISE

WELL MY TITLE SAYS IT ALL

DAKOTA FELL AT SCHOOLWEDNESDAY AND SUSTAINED A SPIRAL FRACTURE TO HIS LEG IN 3 PLACES.THE ACTUAL BONE WAS COMPLETELY SEVERED IN 2 OF THE 3 SPOTS. IT MAKES ME SICK TO MY STOMACH ON MANY LEVELS BUT MOST OF ALL HOW INCREDIBLY TRAUMATIZED HE IS THAT HE WILL HURT HIMSELF AGAIN.

FIRST OFF I AM TO SAY THE LEAST PISSED THAT HE WAS OUT IN THE    "NORTH 40"OF THE CAMPUS WHEN HE SHOULD HAVE BEEN AT THE CAFETERIA OR THE QUAD FOR LUNCH BUT MORE SO THAT HIS AIDE AND THE TEACHER WERE IN CLOSE PROXIMITY BUT  NIETHER SAW HIM DO THIS. I REALIZE THAT DAKOTA NEEDS TO DEVELOP  INDEPENDENCE BUT I CANT HELP BUT THINK THAT, OF COURSE,THIS WHOLE THING COULD HAVE BEEN AVOIDED. THAT BEING SAID  WHAT HAS HAPPENE HAS HAPPENED AND YOU HAVE TO NOW ADDRESS THE NEW SET OF CIRCUMSTANCES.

I AM TRYING TO EDIT THE STORY SO IT IS NOT TOO TEDIOUS OR WORDY. FOR THE MOST PART THE INTIAL EXPIERENCE WAS OVERWHELMING AND HAS GENERATED A WHOLE LOT OF ANXIETY FOR NOT ONLY DAKOTA BUT MYSELF AND I AM JUST GETTING TO THE POINT WHERE I CAN BEGIN TO DISECT WHAT NEEDS TO BE .

THE E.R. WHAT A DISASTER THIS PHASE WAS--I KNOW THAT THEY HAVE TO PRIORITIZE ACCORDING TO EMERGENCY BUT COMING INTO THE ER THE FIRST ENCOUNTER WAS WITH A "MEDICAL PROFESSIONAL" WHO WAS SO IGNORANT ABOUT MY SONS AUTISM I JUST WANTED TO SHAKE HIM BY THE SHOULDERS AND TELL HIM TO  PULL HIS HEAD OUT OF HIS ASS. SORRY-- THEY ASKED DAKOTA TO RATE HIS PAIN ==== HA ==== FIRST OF ALL DAKOTA HAS AN EXTREMELY HIGH TOLERANCE FOR PAIN AND 2ND HE WILL NOT VERBALLY EXPRESS AND ANSWER. HE WAS IN THE ER WAY TO LONG BUT I GUESS EVERYONE THINKS THTS WHEN HEY ARE IN THERE WAITING FOR THEIR TURN TO BE SEEN.  WHEN THEY FINALLY GOT HIM XRAYED ALL OF A SUDDEN THEY STARTED HOPPING TO IT. THEY REALIZED THAT THIS KID WAS NOT COMPLAINING ABOUT SOMETHING THAT ANY OF US WOULD BE SCREAMING ABOUT.

AFTER ANOTHER COUPLE OF HOURS OF ASSESSMENT AND ONSULTATION DAKOTA HAD PROVED ALL IN THE ER WRONG WHEN HE  TOLERATED THEM IGNORING HIM AT FIRST THEN POKING AND PRODING HIM TO PREPARE HIM FOR SETTING HIS LEG--THEY ALL EXPECTED HIM T BE TROUBLE AND I THINK HE TAUGHT A FEW OF THE A LESSON------- 

LONG STORY SHORT --HE REQUIRED A 3 AND HALF HOUR SURGERY AND FINALLY ENED UP IN A ROOM ABOUT 11 PM.THE NURSING STAFF ON THE FLOOR WAS STELLAR AND I HAVE TO SAY THAT THERE WASNT ONE NURSE THAT DIDNT LIVE UP TO THE WAY I THINK A NURSE SHOULD BE. 

LEAVING THE HOSPITAL WAS A NIGHTMARE AND THE DISCHARGE PLANNER WAS THE ONE PERSON WHOS NECK I WOULD LIKE TO RING --NEEDLESS TO SAY EVERTHING HE WAS SUPPOSED TO TAKE CARE OF HE DROPPED THE BALL.BUT WE MADE IT THRU FAUZ PAS AND ALL WIH OR WITHOUT THIS GUYS HELP.

WE HAVE JUST SETTLED IN AT HOME AND REFLECTING ON THE HOSPITAL EXPIERENCE IT IS KIND OF SEPARATED INTO  2 DIFFERENT TOPICS : DAKOTAS TRIALS AND TRIBULATIONS AND THE HOSPITAL LOGISTICS. I WILL FOLLOW UP ON BOTH IN FUTURE ENTRIES FOR OW JUST WANTED TO GET A POSTING ON THE BLOG SINCE I TRY TO POST AT LEAST ONCE A WEEK IF NOT MORE.

JUST ANOTHER DAY IN PARADISE AND LIVING WITH AUTISM!                        MAYBE THE NEXT THING ON MY TO DO LIST IS TO BE A CONSULTANT FOR THE HOSPITAL WHEN DEALING WITH AUTISTIC PATIENTS ! ! ! ! ! ! ! !  

 

2 comments:

Anonymous said...

I know, people are so ignorant.  Mine are so low functioning though that they act real bizzare out in public.  Maybe it's a blessing in disguise though because I know when parents have kids kind of higher functioning the general public acts like they ought to function like everyone else.  When a parent tries to explain they look at you like you are the one who is mentally off kilter.

Anonymous said...

You poor thing.  I can empathize.  When my son was 2.5 yrs old he fell and broker his lower jaw.  Same type of situation, wait, wait, wait, 12 hrs. for the plastic surgeon. At that time my son did not speak.  We did not have an ASD DX.  We were just scared to death about the injury.  Needless to say he had to have his mouth wired shut for 32 days and it was hell for me and of course for him.  Please feel free to visit my blog or email me.  justmyjoey

pam