Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Friday, February 25, 2005

REACTION TO TELEVISION COVERAGE

WELL THE WEEK HAS COME TO AN END AND I HAVE WATCHED ALMOST ALL OF THE COVERAGE. MY INITIAL REACTION IS FINALLY SOMEONE IS PAYING ATTENTION BUT WHY DOES IT TAKE THE CEO OF NBC AND UNIVERSAL STUDIOS TO HAVE AN AUTISTIC GRANDSON TO START RAISING AWARENESS?

THE NUMBERS ARE STAGGERRING 1 CHILD IN EVERY 166 BORN WILL HAVE AUTISM THAT BREAKS DOWN TO SOMETHING LIKE 68 A DAY OR 3 AN HOUR   OH MY GOD FUNDING IS LOWER THAN MOST OTHER CHILDHOOD AFFLICTIONS. 1.7 MILLIONS INDIVIDUALS RIGHT NOW WITH AUTISM THIS IS WHY  I HAVE TRIED TO START THIS JOURNAL. WE WILL SEARCH AND HOPEFULLY FIND SOLUTIONS TO AUTISM BUT FOR NOW OUR KIDS HAVE TO EXSIST  DAY TO DAY JUST THE WAY THINGS ARE--SO WY NOT TRY TO IMPROVE THE QUALITY OF THE "TODAYS" WHILE WE STRIVE FOR ANSWERS IN THE TOMMOROWS?

EVERY AUTISTIC ,EVERY FAMILY HAS DIFFERET CHALLENGES. SOME KIDS WILL BENEFIT FROM ONE THERAPY WHILE OTHERS WILL NOT . ITS ONE OF THE MOST INTRIGUING THINGS ABOUT AUTISM AND ITS WHY I THINK IT WILL BE AWHILE BEFORE THERE IS A BREAKTHROUGH. SECREATON, AUDIO TRAINING,MUSIC THERAPY,TEEACH ,ABA,HORSEBACK RIDING THERAPY,OCCUPATIONAL THERAPY,PATTERNING,VISUAL STIMULATION THERAPY IT GOES ON AND ON BUT ONE THING IS FOR SURE IN EVERY FAMILY I HAVE COME IN CONTACT WITH THE FIGHT IS WITH THE SCHOOLS TO RECOGNIZE OUR KIDS S VIABLE ,INTELLIGENT AND DESERVING OF WHATEVER IT TAKES TO HELP THEM NOT BE A STATISTIC.

WE AS FAMILY MEMBERS HAVE TO KEEP THE HOMEFIRE BURNING ALWAYS AND FOREVER AND NEVER GIVE UP BECAUSE IT IS NEVER TO LATE FOR OUR KIDS AND WE HAVE TO STAND FOR OUR CHILDREN AND MAKE NOISE WHEN THEY ARE NOT GIVEN A CHANCE. EVERYONE IS SO "HEP" TO IDENTIFY THESE KIDS AS EARLY INTERVENTION WHY???? BECAUSE THEIR ATTENDANCE IN SCHOOL IS DOLLARS IN THE DISTRICTS POCKETS BUT ASK FOR SOME OF THOSE DOLLARS AND ITS A WHOLE DIFFERENT STORY. THEN WHEN THEY GET TO BE ABOUT 17 OR 18 AND TRUST ME THEY WILL GET THERE ALL OF A SUDDEN NO ONE WANTS TO TAKE YOUR CALL OR TALK TO YOU ABOUT TRANSITION INTO OUR COMMUNITY  OR LET ME PUT IT A DIFFERENT WAY--YOUR COMMUNITY. WE HAVE TO LEARN TO ACCOMDATE OUR KID NOW PROBABLY FOR OUR SANITY AS MUCH AS THEIRS. LEARNING TO MAKE THE DAY TO DAY STUFF EASIER FOR ALL OF US GIVES A QUALITY TO OUR LIVES THAT IS IRREPLACEABLE. I BELIEVE OUR KIDS WILL FLOURISH IN THIS TYPE OF ENVIROMENT.THEY DONT NEED TO BE PUSHED NECESSARILY THEY JUST NED TO KNOW THEY CAN BE THEMSELVES WITHOUT BEING JUDGED  HOPEFULY IN THE PAGES TO COME I CAN GIVE ONE PERSON AN IDEA TO HELP THEM WORK WITH THEIR CHILD TO MAKE THINGS BETTER IN THEIR HOME. OR SOMEONE WILL ADD SOMETHNG TO THIS JOURNAL THAT COULD HELP ANOTHER OR WE START A NETWORK OF PARENTS WHO CAN HELP EACH OTHER

THE TELEVISION COVERAGE WAS A START  LETS NOT DROP IT THERE       PRESS ON  BUT MOST OF AL ENJOY YOUR KIDS JUST AS THEY ARE AND EMBRACE THERE UNIQUE GIFTS.

 

1 comment:

Anonymous said...

Thank you so much for sharing your thoughts and starting this journal. I look forward to reading and learning from you and fellow posters. I am a mother just starting my journey through identified autistic life. My son is almost 4 years old and I am at the beginning.... It is scary, and frustrating due to the lack of resurces that I feel is appropriate for my child. Thank you and I hope to return to share and learn. Good night, I try to rest as I wonder what will be....