PARENTAL VENDORED RESPITE

WELL ANOTHER CHAPTER IN THE ON GOING  SAGA DEALING WITH PARENTAL VENDORED RESPITE AND MY APPEAL WITH INLAND REGIONAL CENTER. PARENTAL VENDORED RESPITE HAS BEEN ON THE CHOPPING BLOCK FOR QUITE SOME TIME BUT DO TO OUR BUDGET CRISIS IN CALIFORNIA IT IS ALL BUT GONE. I AM IN THE PROCESS OF FILING AN APPEAL WITH INLAND REGIONAL CENTER BECAUSE I DONT BELIEVE THAT OUR RIGHT TO SECURE CARE FOR OUR OWN CHILDREN SHOULD BE HANDLED BY AN AGENCY AND THAT TAKING AWAY OUR ABILITY TO BE VENDORED IS A VIOLATION OF THE LANTERMAN ACT.[ANYONE WHO IS REALLY INTERESTED CAN SEND ME AN EMAIL TO DAKSOPENDOOR@AOL.COM  AND I CAN SEND BACK ALL THE 3 LETTERS I HAVE DRAFTED AND ANY OTHER DETAILED INFO YOU MIGHT WANT].

ON FRIDAY I FINALLY RECIEVED AND APPEAL FORM FROM IRC WHICH GIVES ME 10 DAYS TO RESPOND--ALWAYS CONVIENENT THAT IT COMES ON FRIDAY SO I HAVE TO SIT ON IT OVER THE WEEKEND BEFORE I CAN DO ANYTHING ABOUT IT.

THE REALLY HOAKEY THING ABOUT THIS IS THAT WHEN THE ORIGINAL PROBLEM STARTED AND I INFORMED MY CASE WORKER THAT I WANTED TO APPEAL; INITIALLY HE SAID HE WOULD GET HIS MANAGER [JOHN CARVELE] TO SIGN IT AND MAIL IT OUT TO ME THE NEXT DAY--APROX. 2 WEEKS WENT BY AND I GOT NO APPEAL SO I STARTED A BIG COMMOTION AND ON THE 28 OF DEC I WAS TOLD BY MY CASE WORKER THAT HE WAS MISTAKEN AND THE ADMINISTRATION WOULD HANDLE THIS APPEAL AND I WOULD HEAR FROM THEM AFTER THE FIRST OF THE YEAR. BY THE 16 TH OF JANUARY I HAD HEARD NOTHING SO I CALLED AND INQUIRED AGAIN AND THE CASE WORKER SAID HE WOULD CHECK ON IT AND LO AND BEHOLD COME THIS FRIDAY I GET APPEAL PAPERS FROM THE ADMINSTRATION???NNNNNNNNOOOOOOOOO SIGNED BY JOHN CARVELE THE PERSON WHO WAS SUPPOSED TO SIGN AND SEND IT TO ME IN THE FIRST PLACE.THE PECULIAR THING IS THAT THIS "SCREWY" THING IS NOT THE ONLY THING HAPPENING LIKE THIS.....THE INITIAL INFO I HAD WAS THAT INLAND REGIONAL CENTER MADE A UNI-LATERAL DECISION TO DISCONTINUE PARENT VOUCHERED RESPITE THAN WHEN I STARTED RAISING HELL AND WANTED TO APPEAL NOT ONLY WAS I TOTALLY DISCOURAGED AND TOLD I WOULDNT GET ANYWHERE  THE MORE I PUSHED FOR ANSWERS "THEY" "IRC"  SAID IT WAS NOT THEM WHO MADE THE DECISION AND I NEED TO DIRECT MY CONCERNES TO THE DEPARTMENT OF DISABILITY SERVICES IN SACRAMENTO[DDS] I HAVE WRITTEN THE GOVERNOR AS WELL AS ALL MY ELECTED OFFICALS AND HAVE GOTTEN NO WHERE SO FAR BUT I WILL PERSERVERE  I WILL NOT LIE DOWN

I AM GOING TO CONSULT AN ADVOCACY GROUP TOMMORROW AND NOW I AM CURIOUS IF THERE IS ANYONE ELSE OUT THERE WHO IS LOSING THEIR RESPITE AND HAS A PROBLEM WITH IT LIKE I DO ? AM I THE ONLY ONE NOT ACCEPTING THIS CRAP???