Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Tuesday, June 2, 2015

His Brain Keeps Growing

I continue to be extremely frustrated with IRC (Inland Regional Center)..... So the beat goes on..I know I am not the only one BUT for me this is a critical issue. Dakota does NOT and cannot .s ore well on IQ or functional psychological profiles ..I understand that the test are to be given in a prescribed way and delivered in a "sterile"environment...in order for them to be accurate and fair to all .....YEAH.   YEAH.   YEAH....

THE RESULT IS .they still and remain labeling him as mild to moderately mentally challenged...quite frankly it pisses me off...for a number of reasons but mostly because I refuse to accept it..and these are the people that are supposed to understand, support and help provide for these individuals..especially when there is no one there to help! Yes this kid has very challenging issues with things like money or personal grooming or general survival..yet he can understand things that most people have no clue???so does that make him less..according to IRC (Inland Regional Center) it does . It gets him a label that is untrue....

I get that he needs and will always need support and help in everyday living yet he can label an event according to the presidential term rather than the year or date ???who does that?? He can recognize a commercial before the dialogue happens ...the SECOND the music hits the first chord he will start reciting the words....he can memorize an event that has happened years ago and associate things with a specific item of clothing or a situation...his brain is very complicated, but it is ?NOT LESS THAN....it just works different..why is that wrong...STIGMA

ON top of all of this I continue to see lil breakthroughs on a regular basis which tells me his brain is still sorting, still growing , still finding new ways to communicate.....another subject that is PooPoo'd because surely he can't still be developing ??? He's an adult , his brain has done all the growing it's
gonna do...B.S..... IRC will not even entertain the idea that a kid his age would benefit from things like ABA(Applied Behavioral analysis ) or any other academic or behavioral help....try to find programs that don't warehouse them..impossible ...is there anything out there for these individuals to be in the "typical "world...NO.....AS a parent you just have to search out opportunities and stay on it and insist that they get the best possible choice to be out in the world with all of us..and. NOT sequestered away.

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