Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Saturday, February 15, 2014

The Pink Glass and the miracle of FaceBook,friends and the Internet

Trying to keep inline with my with my focus on Dakotas daily living skills as the topic for this years posts !I felt that this weeks events were particularly relevant... 

As puberty approached I noticed that OCD (obsessive compulsive disorder) seem to take the front seat to the Autism with Dakota...much more ritualistic behavior especially anything that had to do with eating...he has always been a great eater as far as what he will eat, it's been more about the places, the days of the week and even some of the "tools" used.

For instance, his consumption of liquid has been dictated by the vessel in which the liquid resides in...he HAD  a specific glass for juice but sadly it got broken and since there have been numerous attempts by me as well as friends to find the perfect replacement ..to NO avail...it was a glass that had the oranges painted on the side and I never imagined that there were that many variations of this glassware until I wanted a replacement , one friend searched as as Texas and even had her daughter looking and buying one of a trip to Vegas..
the only reason I was trying to replace it was because Dakota absolutely refuses to drink juice out of any other container...believe me I have tried; pouches, bottles, plastic sippy cups other juice glasses ..BUT     N O      nothing doing if it ain't that glass forget it..it has been several years and we have gone thru probably 7 to 10 offerings and still to this day he will not drink juice any longer!

So this week when I finally broke his last Pink Glass that he drinks his decaf ice tea out of , I knew I was in trouble.
let me preface this with the fact that I started giving him these glasses long before I knew there was an obsession with the container or I never would have used glass,that could be broken;however it was too late to change once the OCD was already in place ..and I did try to stash duplicates but eventually they had to be used....
So this week Wednesday was already the day from hell. My mom was going for an outpatient procedure and things were rough, Dakotas coach was sick and the whole day was screwed up....then.  Go to get his tea in the pink glass out of the refrigerator and BOOM ..slipped right out of my hand. I wasn't too rattled because I knew I had one last one stashed so I very calmly pulled it out of hiding ,went to wash it in the sink and son of a bee???the damn thing tipped over and POP.....out pops the side of the glass...I even had a liner in the sink to prevent breakage BUT.  NO this damn glass just had to break???needless to say I became the mother from hell cuz I just broke his glass....I was cussed at, yelled at, hit and the worse part of all ...he was refusing his tea in any other glass???one might not so worried but here's the rub??Dakota has some kind of aversion to water and he just does not drink enough water ..he will. It drink water from a bottle , even a big sparkletts bottle, from a glass, from anything but a spigot like a water fountain or drinking fountain in school or a professional building...again believe me I have tried so I argument his water intake with decaf ice tea...now his glass is broken and I am up shit creek without a paddle...

So here's where friends and FaceBook come in...I posted an APB(all points bulletin) to all my homies on FB to keep their eyes peeled or to send me resources to try to find these glasses since I had tried a few times to replace them befor and ran into a few walls ???within the day I went from Libbey Glass , to Anchor -Hocking to Wheaton...but I posted this morning and with the good efforts of friends,family, Facebook and the internet I have at 12 midnight placed an order for Dakotas pink glass..and I have ordered hopefully enough to last his lifetime..I have 8 coming and my sights on 4 more...considering I had these glasses befor he was born I think that 8 should be enough but hey who knows???

All I can say is Thank you for all the people who helped sort through the internet ..it really does take a village
I know some would say that Dakota needs to get over it and learn to deal But I say he didn't ask to have these damn disorders so I will accommodate something that makes a difference in his life???perhaps there will be a day when he might have to adapt??there could be a situation where it would be impossible to replace or find a glass ..
For now I am happy to say THANKs to my friends, FaceBook and the internet,the new pink glasses are on their way.

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