Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Sunday, January 29, 2012

Not A New Years Resolution!!!!!

Over the course of the first weeks of this year I have had a couple of "discussions" via email with Moms who have had specific issues which I believe should be posted here. I am quite sure if you go back among the already existing  posts you may find similar subjects but I am convinced that these subjects bare repeating...... 

Both of these are subjects that I would not consider to be "resolutions" but more a promise to yourself to not get sucked up into other peoples opinions and observations about your child and his good or negative behavior.

The first is IEP's and the IEP team and the way you pour your heart into these events and come out drained , emotional and for the most part feeling defeated-- If I could advise any parent only one thing it would be this;

I went thru so many years of IEP's and I swear it took more of a toll on me than caring for my son--One thing that kept me going was I knew I was his voice and whether they liked it or not . I was a part of the IEP team and my input weighed as heavily if not more heavily than all the others combined--


Stand up for all you believe in and do not give in--BUT remember that its only a small part of your childs  life.

Come 22 and he exits there is still a lot of living left . The transition services--SUCK There is nothing out there right now-----These kids have a typical life expectancy and they will be in the community far longer than the time that they spend in school
I guess what I am saying is "perspective' Don't let those school numb heads get to you I am sorry for all the tears and stress I put myself thru only to realize that all I fought for was gone once school was no longer a part of his life.

If I had the opportunity to give additional information  on my experience 
It would be this

We have to remember that these kids disability is their behavior  When someone, anyone who is a part of the team that is involved with your child  reacts in a way that does not " sit right " with you -- DO NOT  dismiss it as you being to sensitive  "GO WITH YOUR GUT"      If your child develops behavior in a new setting don't always blame the Autism --look at the people and environment SOMETHING has changed--I certainly am not saying that a person or persons are bad or mistreating what I am saying is there is potential for a "mis-match"  Not every person can get along or like every other person and sometimes that can make all the difference in a therapy or a program or a class. Do not be apprehensive to change the sooner you do it the sooner you will get {hopefully} more positive behavior and results not to mention your child will more at ease...   

So for now these are things that I want to leave you with--I am not a resolution type of a girl but I think realizing all the mistakes I made over the years -- Trying to give small purview to my experience may help someone else> For Now no resolutions just promises ---to yourself to keep a keen eye and a peaceful frame of mind when you are helping your Autistic Individual.  
 

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