Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Saturday, July 17, 2010

Can You Imagine?

How many times in your life have you had a cut,scratch,or scrape? A sore throat,ear ache or tooth ache? A hang nail, stubbed toe or pulled muscle? An eye twitch,some type of bruise or a migraine???

Can you imagine waking up every morning with a massive headache and not only be unable to tell someone about it but never have a remedy. Meaning EVERY DAY FOR THE REST OF YOUR LIFE you would have to live with this condition. Thats the way I imagine in my head that Autism feels like-- the static that goes off in the brain has got to be so overwhelming how could any individual get any peace for their entire life?

Add to that the inability to express pain from every day life and how many of you would be able to tolerate it? I think I would land in the "Loony bin":or worse--I wont say---
Each and everyone of us as human beings have the maladies I mapped out in the beginning of this piece and we run to the medicine cabinet or the doctor to get help and hopefully relief.

BUT my kid has NEVER once expressed pain or discomfort 23 years. I cannot imagine what goes thru his head-- Does he expect me to sense that he is experiencing these pains? All I can conjure in my head is that he just assumes that I know he is not feeling well and I will fix it--- THIS KILLS ME!I cant tell you how many times I have said to him "You dont have a "moving message" board on your forehead to tell me what you are thinking" and if he needs some kind of assistance he has to use his words!

I know that is easy for a typical person to say because of course it is easy for us to do== BUT again how incredibly hard must this be for our kids??? I just CANNOT Imagine! 

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