Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Sunday, May 2, 2010

Just thoughts----

I have not posted this past week because I wanted the Anthesis activity to remain on the top for those who visited from my posts on the web groups---

The past week had presented more challenges however I feel reluctantly optomistic. Although it seems that it may be meds that have helped; it is a bit of a relief if the new regiment works---

When you get pregnant the first thing that happens, EVERYONE is harping at you: "Dont Smoke, Dont Drink, Dont take Caffeine, Be sure to take your Vitamins--eliminate stress---- yada, yada, yada-- OK its all for the baby so he/she can have the best start in the world. Then you have the baby and there are complications and what is the first thing they do???  Start pumping drugs into them obviously to save the child but it just seems screwy-- Then there is always some woman who did not "obey" all the "rules" Lived recklessly while pregnant and has a perfectly normal Baby-- wheres the justice???

Then you find out that your child will have a disorder for the duration of his life and whats the answer- MORE DRUGS???? It goes against all that has been "preached " to you since pregnancy. The next observation is that this child has stuff going on in his head that he does NOT DESERVE  to cope with--So you have to decide what is most important. For me it is His quality of life, his peace of mind, his functionality.

Without expounding on numerous strategies there are all kinds of things out there for Autistic Children and many of them are everything BUT medication. You explore all the alternatives and you pick and choose what seems to work for you your, child and your family. Some work, some dont. Some work for a while and then fizzle--All of our kids are different and different things work for different kids. Ultimately every kid will find his own niche-- but the caregiver has got to be keenly aware of what works and be willing to try different things till your find the right combination.

In our situation many things have not worked. Medication as a last result has seemed to be the most effective--- Dakota has really been going thru a rough patch since Christmas and I have been feeling really overwhelmed.  He is growing into fullfledged adult and the hormonal surges are stronger than ever--Its a tough deal cuz Nature has delayed them developmentally but not physically AGAIN  another thing that is not fair BUT it is what it is? He has developed this rage that comes on without notice and it snowballs very quickly. It makes me crazy cuz I most of the time I dont see it coming and I cannot figure out what triggers it. I feel so bad he has these "creepy crawlers" in his brain. I decided the meds he had been taking were no longer working soooooooooooooooooooo time to try something new. 

Last weekend was the tipping point-- he had the ultimate meltdown . It tore my heart apart--- I had to try something and after much distress a decision was meds to try different meds----I am stll trying to "tweak" the right doseage but it seems like perhaps I may have found some relief for him.

Perhaps this is all boring and even redundant from previous posts but I feel like theres always that chance that someone who has never read me before will get something from this post. I guess the purpose of this post is to reirerate one of my "mantras"  NEVER GIVE UP!        


   

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