Words to live by---

These 3 things remain true to the "Journey of Autism". Anyone or everyone can advise you;

ULTIMATELY you MUST go with what you feel is right. "GO WITH YOUR GUT."

Once you have arrived at this decision; "NEVER GIVE UP"!

LASTLY "Ya Gotta do, what Ya Gotta do!"



Monday, September 5, 2005

LETTER TO A MOM

I JUST GOT AN EMAIL FROM A MOM WHO ASKED ME ABOUT DIFFERENT THERAPIES --IF I HAD DOEN THEM OR NOT AND HERE WAS MY RESPONSE:

IN DIRECT RESPONSE TO YOUR QUESTION ABOUT THE THERAPIES I HAVE NOT DONE THEM SPECIFIC TO DAN PROTOCOL-- PLEASE REMEMBER WE ENTERED INTO THIS 18 YEARS AGO SO INFORMATION THAT THAT POINT WAS VERY DIVERSE TO SAY THE LEAST HOWEVER WITHOUT BEING A NAY-SAYER I AM REALLY NOT CONINCED THAT THE DE-TOXIFICATION; CHELATION; GFCF IS ""THEEEE ANSWER"" JUST AS I AM NOT TOTALLY CONVINCED THE THE MERCURY IS ""THEEE CAUSE""   HERES WHAT I THINK  OUR KIDS MAY HAVE EXPOSURE AND POSSIBLY HIGHER CONTENETS OF BAD THINGS THAT DOES CONTRIBUTE TO THEIR CONDITION AND BEHAVIOR AND I AM QUITE SURE THAT THOSE WHO DILIGENTLY FOLLOW THE DAN PROTOCOL ARE SURE IT WORKS -- FOR THE MOST PART BUT I GUARANTEE YOU THAT FOR EVERY ONE WHO HAS HAD A SUCESS  STORY I WILL BET THERE IS ONE WHO DIDNT SEE THE SAME RESULTS WHAT I DO KNOW IS THAT WE CONTINUE TO TRY TO PINPOINT THE CAUSE OF AUTISM BUT NO ONE -- AND I MEAN NO ONE AT THIS POINT HAS A ROCK SOLID ANSWER SO WE MUDDLE THRU AND DO WHAT WE FEEL WORKS FOR US AND TO BOW DOWN AND PRAY TO THE ""DAN ""GODS  OR ANY OTHER ONES AT THIS POINT STILL PRESENTS THE POSSIBILITY OF IT NOT WORKING ON YOUR CHILD-- THAT IS WHY I KEEP TRYING TO IMPRESS ON THOSE I MEET THAT IT IS STILL THE QUALITY OF LIFE FOR OUR KIDS .  IN ORDER TO DELIVER THAT YOU HAVE TO SPEND TIME -- LOTS OF IT WATCHING OBSERVING LISTENING EXPERIMENTING TO ASSIST YOUR BABY TO LEARN TO LIVE IN THE WORLD WITH THIS TERRIBLE CRAP CALLED AUTISM OUR SOCIETY IS IN SUCH A HURRY AND SO FIXED ON KEEPING UP WITH THE JONES THAT ALL MANY THINK ABOUT IS  FIND A CURE --GIVE THEM A PILL AND OUR TROUBLES WILL BE OVER OR IF SUSIE AND JOHN DID THIS FOR THEIR KIDS THEN SURELY IF I DO IT FOR MINE IT WILL WORK-- UNFORTUNATELY THE WORLD IS NOT SO ""COOKIE CUTTER"" ITS NOT FAIR ; ITS NOT KIND AND IT CERTAINLY IS NOT EASY HENCE DENIAL FOR ALOT OF FAMILIES FIRST LEARNING ABOUT AUTISM      I DO BELIEVE THAT THERE IS CERTAINLY NO HARM IN UTILIZING WHAT YOU KNOW TO MAKE INFORMED DECISIONS THAT COULD HELP AND IN THAT ASPECT I HAVE TAKEN A LITTLE HERE AND A LITTLE THERE AND MADE MY OWN RECIPE WHICH WORKS FOR US AND I AM CURRENTLY DEBATING TRYING A FEW BIO- MEDICAL THINGS  BASICALLY ENZYMES ,PRO-BIOTICS AND POSSIBLY THE TRANS DERMAL CHELATION --ALL MORE HEALTH FOOD THINGS RATHER THAN DOCTOR MEDICAL THINGS AND I ACTUALLY HAVE ONLY STARTED THE PRO- BIOTICS-- TRYING TO GIVE IT A CHANCE BEFORE I START ANYTHING ELSE-- BUT ONE MORE CATCH IS THIS EVEN IF THESE THINGS WORK ---HOW LONG WILL THEY WORK? WILL THEY CONTINUE TO BE EFFECTIVE AT THE SAME LEVELS OR WILL THEY HAVE TO BE INCREASED OR DECREASED--POSING A NEW PROBLEM ESPECIALLY IF THEY REQUIRE BEING DECREASED COULD WE POISON OUR OWN KIDS BY GIVING THEM TOO MUCH OF WHAT WE THINK IS  GOOD THING THERE BY CAUSING ALTERNATE BEHAVIORS TO ERUPT AND BEING BLIND ENUF TO NOT REALIZE THAT WE DID IT TOO THEM INSTEAD OF THINKING THAT THEY ARE DEVELOPING ANOTHER PHASE OF A DIFFERENT BEHAVIOR WHEN IN FACT THE THING WE GAVE THEM ACTUALLY TRIGGERED THE BEHAVIOR???? THATS WHY I AM SO ADAMANT ABOUT JUST TAKING TIME TO BREATHE AND THINK THINGS OUT AND OBSERVE-- BELIEVE ME ITS NOT EASY -- I AM NOT A PATIENT PERSON AND I DONT WANT MY SON TO SUFFER ANY MORE THAN HE HAS TOO BUT THE ONE THING I HAVE REALLY COME TO OBSERVE IS WHEN THINGS ARE PREDICTABLE AND SAFE AND THE MOON AND THE STARS ARE ALLIGNED RIGHT AND I SEE DAKOTA PEACEFUL AND ENGAGED I REALIZE THAT THERE IS A CERTAIN INNOCENCE THAT COMES WITH AUTISM. HE OFTEN TIMES DOES NOT NOTICE OR ACKNOWLEDGE THAT HE IS DIFFERENT FROM ANYONE ELSE AND THAT HE IS PERFECTLY HAPPY BEING AND DOING WHAT HE IS .   ITS ALL OF US OTHER CRAZY PEOPLE TRYING TO TWEAK HIS WORLD BECAUSE WE THINK THERE IS SOMETHING WRONG NOT BECAUSE HE DOES!!!!    ITS ONCE AGAIN MY PASSION TO TRY TO GET PEOPLE TO JUST TAKE ONE EXTRA MINUTE TO DO NOTHING  TO STOP THE SCHEDULE STOP THE APPOINTMENTS STOP HAULING THE KIDS FROM THERAPY TO THERAPY AND GIVE THEM A MINUTE TO JUST BE KIDS , TO TAKE A MINUTE TO SEE IF THINGS ARE WORKING. YES DO EVERYTHING IN YOUR POWER -- BE WILLING TO TRY NEW THINGS BUT ALSO BE STRONG ENOUGH TO OBSERVE WHEN IT DOESNT WORK  OR ITS NOT RIGHT FOR YOUR FAMILY AND DONT LET ANYONE INCLUDING ME TALK YOU INTO OR OUT OF WHAT YOU FEEL IS RIGHT FOR YOUR CHILD   

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