WHATS HAPPENING WITH "THE FOOT"

THE  TOENAILS HAVE BEEN REMOVED FOR A WEEK NOW  AND I KNOW ITS TOO EARLY TO TELL BUT I AM FINDING MYSELF ANXIOUS TO  SEE IF I PUT DAKOTA THRU A SURGERY FOR NOTHING--------- IT IS SO  INCREDIBILY FRUSTRATING TO HAVE A KID THAT HAS ALREADY GONE THRU SO MUCH AND TO  HAVE HIM SUFFER MORE PAIN AND DISCOMFORT BECAUSE WHAT I PERCEIVE IS SOMEONES ELSES MISTAKE. FROM THE LACK OF SUPERVISION ON THE PART OF THE STAFF , TO  THE MAINTENENCE OF THE BALLFIELD  , TO THE UNBELIEVABLE WAIT IN THE E.R. TO THE CAST NOT BEING APPLIED RIGHT--ALL NOT HIS FAULT 

IT JUST PISSES ME OFF THAT HE HAS TO ENDURE THESE PROBLEMS WHEN HE IS ALREADY DEALING WITH SO MUCH MORE --THE AUTISM!!! SOMETHING  THAT WILL NEVER GO AWAY!  I DONT THINK MOST PEOPLE REALIZE  THAT CHILDREN AND THEIR PARENTS WHO HAVE ANY KIND OF DISABILITY  FIND THAT EVRYDAY FROM THE MOMENT THEY WAKE UP UNTIL THEY LAY THEIR HEAD ON THE PILLOW  TO SLEEP  IT IS  A CONSTANT CHALLENGE THAT DOES NOT GO AWAY. WE ALL ACCEPTED  IT AND GET ON WITH LIFE -AS IT IS-- BUT TO HAVE TO ENDURE OTHER OBSTACLES LIKE ANOTHER  INJURY OR  ILLNESS ON TOP OF THE DISABILITY IS OFTEN TIMES OVERWHELMING. WHEN YOU HAVE TO MAKE DECISIONS THAT CONTINUE TO PUT YOPUR CHILD IN MORE PAIN OR SUFFERING     IT KILLS YOU A LITTLE BIT MORE EVERYTIME.

WELL TO BE CLICHE' I GUESS ONLY TIME WILL TELL BUT  AS IT IS NOW  I WAITING FOR ANY SIGN THAT DECIDING TO  INFLICT MORE PAIN TO MY KID WILL PAY OFF IN THE LONG RUN AND THAT THE TOES HAD TO BE REMOVED AND IT WILL HELP HIM TO WALK BETTER-- BUT HERE WE ARE 6 MONTHS SINCE THE BROKEN LEG AND WE ARE STILL  NOT EVEN CLOSE TO PUTTING THE FINAL CHAPTERS ON THIS INCIDENT.

HAPPY THANKGIVING

 May your plate be filled with all the goodness of the
     holiday offerings- - -
        Your heart be filled with all the joy this season
     can bring - - - 
         And the knowledge that a friend wishes you all the     trimmings for a Happy Thanksgiving

         Cindy

HAVING TROUBLE

SORRY ABOUT THE GAP IN POSTS   THE JOPURANL HAS BEEN HAVING TECH TROUBLE AT AOL

 

ANOTHER GO AROUND WITH DOCTORS

BOY  DO I GET BEHIND--- I KEEP SAYING TO MYSELF  OH I WILL SIT DOWN AND WRITE AND THEN ANOTHER DAY GOES BY

WELL TODAY DAKOTA HAD  2 TOENAILS REMOVED ON THE SAME DAMN FOOT THAT  HE BROKE HIS LEG  THE FRUSTRATING THING IS THAT ALTHOUGHT THER ARE MINOR PROBLEMS WITH THE NAILS  WE MAIN REASON FOR REMOVING THEM IS BECAUSE AFTER 6 MONTHS  DAKOTA IS STILL NOT WALKING RIGHT ON THEAT LEG. HIS "GAIT" IS MESSED UP AND HE SLAPS HIS FOOT  KINDA TO THE SIDE INSTEAD OF TURNING HIS TOES AND LINING THEM UP CORRECTLY WITH THE LEG .  SO THE PODIATRIST AND I DECIDED THAT THE ONLY WAY WE WILL BE ABLE TO KNOW IF THE NAILS ARE CREATING PROBLEMS AND CAUSING HIM NOT TO WALK CORRECTLY IS TO ELIMINATE THEM

ITS ALMOST STUPID BUT NECESSARY  BECAUSE OF THE AUTISM .  DAKOTA HAS A LOT OF LANGUAGE BUT SEEMS TO BE UNABLE TO RESPOND TO THE THERAPY CORRECTLY AND/OR TELL US IF THE NAILS OR  ANYTHING ELSE IS BOTHERING HIM  OR CAUSING HIM NOT TO BE ABLE TO WALK RIGHT AGAIN.  I WOULDNT BE SO UPSET BUT BECAUSE OF THE WAY HES WALKING IT THROWS  HIS  KNEE OUT TO THE SIDE WHICH  IN TURN  CAN CAUSE TROUBLE WITH HIS HIPS AND OF COURSE CAN  GIVE HIM TROUBLE WITH HIS BACK.

HIS DAD HAS CONGENITAL BACK PROBLEMS SO I AM FOREVER TRYING TO WATCH HIM TO SEE IF THERE IS A PROBLEM . COMBINED WITH HIS HIGH TOLERANCE FOR PAIN AND THE FACT HE WONT TELL  US WHEN HES  HURTING  IT IS A CONSTANT BATTLE TO "READ HIM" FOR PAIN.

WELL ITS DONE AND HE DID SO WELL   THE DOCTOR WAS REALLY PLEASE WITH HIM . HE WAS INCREDIBILY BRAVE AND CO OPERATIVE .  I AM SO THANKFUL . SO MANY PARENTS HAVE AUTISTIC CHILDREN THAT WILL NOT ALLOW ANYONE TO TOUCH THEM FOR ANY REASON-  HAIRCUTS ,  MANICURES ,  DENTISTRY , BLOOD TESTS       SO  MY GUY DID EXCELLENT

2 TIPS --- I STARTED EARLY HANDLING HIM WHEN IT CAME TO CLEANING HIS FINGERNAILS AND TOENAILS BEFORE HE COULD DECIDE HE WOULDNT LET ME TOUCH THEM                   I  ALSO STARTED CUTTING HIS HA IRBY PUTTING HIM  IN FRONT OF THE TV  WITH A FAVORITE VIDEO AND TOOK HIM TO THE DENTIST AND FLOBBOTOMIST EARLY TO DESENSITISE HIM    WHICH HELPS IMMENSELY

THE THE 2ND TIP AND MOST IMPORTANTLY WAS I WENT EQUIPPED WITH A LITTLE PORTABLE DVD PLAYER  CHARGED UP AND READY TO PLAY THE MOST RECENTLY RELEASE MOVIE THAT HE HAS BEEN ASKING FOR    AS SOON AS I GOT HIM ON THE TABLE THE DVD PLAYER CAME OUT AND WAS PUT ON HIS CHEST WITH "CHARLEY AND THE CHOCOLATE FACTORY" BLAIRNG AWAY   IT BLOCKED OUT WHAT THE DOCTOR AND NURSES WERE TALK ABOUT AND IT ALSO BLOCKED HIS LINE OF SIGHT DURING THE PROCEDURE

BEST INVESTMENT I HAVE MADE IN A LONG TIME!!!!!
WEL BETTER GO CHECK ON MY PATIENT!!     

HALLOWEEN

WHERE DO I BEGIN?   I HAVE COME TO THE CONCLUSION THAT I CAN ONLY OFFER THE OPPORTUNITY FOR DAKOTA AND IT HAS TO BE UP TO HIM TO TAKE IT.

I SPENT QUITE A BIT OF TIME DECORATING THE HOUSE AND AFTER A COUPLE OF YEARS DAKOTA FINALLY CONCEDED TO BEING PROFESSOR QUIRRELL FROM THE FIRST HARRY POTTER BOOK . FOR THOSE OF YOU WHO ARE NOT POTTER FANS PROFESSOR QUIRRELL WAS A MOUSEY COWERING CHARACTER THAT TAUGHT THE "DEFENSE OF THE DARK ARTS'. IT IS REVEALED THRU THE FIRST BOOK THAT VOLDEMORT {THE ARCH VILLIAN OF HARRY } HAS POSSESSED QUIRRELL'S BODY AND AT THE VERY END OF THE BOOK THE STRANGE TURBAN THAT PROFESSOR QUIRRELL IS WEARING IS REMOVED TO  EXPOSE VOLDEMORT ON THE BACK OF HIS HEAD CREEPY-HUH?  I CON-COCKTED A COSTUME MADE FROM SCRATCH WITH ALL THE BUTTONS AND BELLS INCLUDING A MASK WHICH I PAINTED FLESH  COLOR AND RIGGED BATTERY OPERATED LIGHTS UNDERNEATH IT ON THE BACK OF A TURBAN THAT DAKOTA WAS TO WEAR ON HIS HEAD-- IT WAS ONE OF THE COOLEST COSTUMES I HAVE EVER CREATED AND JUST GUESS WHAT HAPPENED???

KEEP GUESSING??? NO THATS NOT IT- - - - - - -                           YEP THATS RIGHT HE REFUSED TO DRESS - - - PERIOD! HE WOULD NOT EVEN COME NEAR THE COSTUME  IT WAS THE STRANGEST THING IT WAS AS IF HE WAS CONFLICTED  LIKE HE WANTED TO BUT HE KEPT SAYING "I JUST WONT TRICK OT TREAT ANYMORE""I AM DONE WITH IT ALL" I AMAZED MYSELF I KEPT MY COOL AND JUST TOLD HIM THAT IT WAS HIS DECISION AND HE HAD TO DO WHAT HE WANTED TO DO     I ANALYZED AND ANALYZED AND CAME UP WITH SEVERAL REASONS HE BAILED BUT THE END RESULT IS WHAT I SAID AT THE BEGINNING

I CAN ONLY OFFER THE OPPORTUNITY AND HE HAS TO DECIDE!!